Posted in bipolar disorder, Cognitive problems, Fiber, Psych meds

Withdrawal Sucks

I had read about how getting off Cymbalta is hell. I thought people were overstating it. Turns out, they were right. Getting off Cymbalta is hell. I’ve now gone through 8 weeks of withdrawal, and I’m not done. I had a couple weeks where the cognitive deficits were bad enough that they mimicked dementia. Dementia feels terrifying. Although I walk from the parking lot to my class, three days I turned down the wrong street and had to scramble to figure out where I was. One night, I had a hard time finding the street on which I live. And I’ve lived on this street for 17 years. Last Sunday, my brain started to feel better. I had five good days before I had a withdrawal relapse. This time, I had vertigo followed by “flu-like symptoms.” Today, I feel good again although I have to slow down, sit and think, before I can remember something I did – like where did I put my water bottle.

I’ve been sewing.

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I used the Slouchy Tee Shirt Blouse patter from Hotpatterns. You can find the pattern here.

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The pattern calls for a rib knit cuff, but I don’t care for rib knit cuffs. The ribbing always wears out and looks nasty. The point of sewing your own clothes is so that you can have what you want. I folded the sleeve in half and added a button hole. Then I sewed on a button, and the opening at end of the sleeve is now comfortably small. You may have noticed the buttons are different. My blouse, my buttons. A friend sent me about 20 pounds of buttons, and I couldn’t find two of either of these so I decided to use the two I could find.

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I wanted to make holiday earrings but didn’t want to make earrings that screamed CHRISTMAS!!!! Angels can be worn all year long. These two pair, along with other cool stuff is in my store.

I’m linking with Nina Marie here. Stop by and see what other artists have been doing.

If you’re looking for angel earrings (or other cool stuff), please stop by my store, Deb Thuman Art here.

Posted in bipolar disorder, Clay, Fiber, Pottery, Quilts

Bring Back The Original Asylum

I’ve been thinking about the Buffalo Psychiatric Center which was originally known as the NYS Asylum.

The original purpose of the asylum was to give those with a mental illness a calm place in which to heal. New therapies were used. Patients were allowed to work on the farm and in gardens. They were allowed access to the library. They were encouraged to create useful things via weaving and woodworking. The halls were wide and the windows large. Patients were discouraged from staying in their rooms and encouraged to interact with other patients by sitting in the chairs lining the hallways and chatting. It was thought fresh air and sunshine would be a benefit and there were verandas where patients could sit outside. The purpose of the asylum was to cure patients so they could return to their families.

Eventually, the asylum turned into hell. A good portion of the land was taken over and became the campus of Buffalo State College. The farm was gone. Crafts were gone. Inmates were housed in the hallways because the facility that was designed for 600 patients suddenly had 3000 patients. Patients were tied to their beds, confined in ice baths, given insulin treatment, given electric shock treatment, given lobotomies. Inmates were dumped into what was called the Buffalo Psychiatric Center and forgotten about. No one was cured. Everyone was warehoused, mistreated, and likely over medicated. Nothing like Thorazine to keep the tortured inmates docile.

Now, we know that damage to the hippocampus – the part of the brain that is damaged when the brain’s owner suffers from Post Traumatic Stress Disorder – can be healed. The damaged neurons in the hippocampus can regenerate and heal. We know that regeneration is triggered by learning something new – such as how to manage a farm and by creativity such as weaving cloth or making items from wood. We know that fresh air and sunshine is beneficial. We know that being social is beneficial and an antidote to depression. We know that lobotomies did harm and never helped. We know that electric shock treatment was horribly overused and had little effect. We know that confining someone to an ice water bath is torture.

Can mental illness be cured? I think so. I think so even though I take a mood stabilizer and an anti-depressant every day and likely will always need to take psych meds. I believe the bipolar disorder can be tempered to the point where I need significantly lower doses.

I am going through withdrawal because I need to come off cymbalta. The drug was sucking the joy out of my life. I didn’t feel like going to class. I didn’t feel like doing any reading. I didn’t feel like doing my homework. Most telling, I didn’t feel like making art. I cannot and will not live in a joyless world.

I felt bad enough one morning that I considered going to the hospital and asking to be admitted to the psych ward. While considering my options, I remembered the two psychiatrists I was forced to see – both of whom insisted that I take more drugs and higher doses. I don’t need more drugs now; I need fewer drugs. And so I didn’t go to the hospital.

Choices for those of us living with a mental illness shouldn’t consist of misery of the illness or in the alternative, misery of treating the illness and being told there’s nothing anyone can do for us besides feed us more drugs.

For the first time in months, I want to make art. I’ve got designs for two quilts worked out. One is based on an exercise done in a drawing class. I model for the art department and I get to sit in on critiques. As I learned about the drawing assignment and listened to the comments made about each drawing, a quilt started to form in my head. Yesterday, my animal physiology teacher mentioned we could come to class on 10/30 dressed in an animal physiology theme costume. Got a dandy quilt in my head for that day. I’ve also got to figure out how to do the final quilting on the nerve regeneration quilt. This weekend, I’ll do a glaze firing and maybe even make for little ceramic trays.

I’m linking with Nina Marie here.

Looking for a one of a kind gift? Please check out my store, Deb Thuman Art here.

Posted in bipolar disorder, Emotions, Garden, PTSD

Home Again

We flew to Buffalo, NY last week for a vacation. I’m from Williamsville, a suburb north of Buffalo and Jim is from Cheektowaga, a suburb east of Buffalo. We went so we could visit with friends, see the Threads of Resistance quilt show, and bury some ghosts.

The Threads of Resistance show was moved to a later date about a week before we were to leave. No, we couldn’t change plans. School starts this Wednesday and we both had to be back for classes.

Seeing friends from law school and a friend from before high school again was fun. I had beef on weck, a Buffalo delicacy consisting of thinly sliced roast beef layered on a kaiser roll that is studded with coarse salt and caraway seed. Add fresh horseradish, and it’s a food found in heaven. Jim had fish fries. In Buffalo, an area where about 70% of the population is Catholic, every decent restaurant and gin mill has a fish fry on Fridays. New Mexico is devoid of fish fries.

My mother and her husband had a cottage on Rushford Lake. It’s a place that holds so many misery filled memories for me. My mother and her husband hated me. Nothing I ever did escaped criticism. Nothing I ever did was worthy of praise. I got screamed at and hit on a daily basis. My escape was to take a long walk through the woods. When I was in high school, my mother would take my brother and sisters out to the cottage during the week. I was left home to babysit her husband. During the day, I’d go through cookbooks searching for interesting recipes to make for dinner. I’d carefully follow a recipe, make dinner, and wait for my mother’s drunken husband to come home. And wait. And wait. Finally, a few hours later, he’d stagger in and announce he had already eaten. He was drunk enough to forget I was at home. Then he’d stagger off to bed. I’d eat by myself. One week, I told my mother I wanted to go out to the cottage, too. “You’re not going.” No explanation. Not that one was needed. She hated me and didn’t want to be around me.

When I was in law school and after my mother and her husband moved to Florida, my siblings decided to have a day at the lake. I joined them. Before leaving, I sat in the middle of the living room floor and got hysterical. It was like going back into the most traumatic memory I had and having to relive the experience of that memory. I survived the day at the lake. My siblings could go out to the cottage any weekend of the summer. My mother and her husband’s hired help got to go out there one weekend a summer. My late sister’s soon-to-be-inlaws got to go out to the lake. I wasn’t allowed. Not even on father’s day.

I wanted to go to Rushford Lake, take a walk, and bury ghosts. As we approached the turnoff for the road the cottage is on, I felt my stomach tighten and the anxiety build. We drove down to the lake and were greeted by an assortment of signs demanding we not park near the lake. We drove to one of the trails through the woods that I used to walk down. It, too, came with signs demanding anyone who didn’t live there to keep out. Jim parked on the main road. I walked down the trail. I buried the ghosts.

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The illusion of solitude. Oddly, I didn’t get bitten by mosquitoes.

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I buried the ghosts in an unmarked grave.

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Bright spots in a dark world.

I earned two undergraduate degrees in college, one in journalism and the other in biology. My interest in biology was plants. One of my favorite places to go was the Southpark Botanical Gardens renamed Buffalo and Erie County Botanical Gardens. The gardens used to be free. Now, the senior rate is $10. And someone decided to remove the citrus room. That room was my favorite. Filled with orange, lemon and grapefruit trees always in bloom. The scent of that room was wonderful. I would sit on the bench and just smell the room. There’s now a single lemon tree.

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The Buffalo Psychiatric Hospital, renamed the Richardson-Olmstead Campus, was built by H. H. Richardson. It’s a magnificent, huge building. When it was designed in the mid-19thcentury, the idea was to cure mental illness. Wide hallways with natural light encouraged patients to leave their rooms and socialize. There were shops – wood and fiber – where patients could do useful work and a shop where the patients could sell their work. The original grounds, more than 200 acres, included wandering paths and a working farm where inmates could engage in worthwhile physical labor. Eventually, about 2/3 of the grounds were removed from the hospital and used as the Buffalo State College campus. Both Jim and I graduated from Buffalo State College. In the early 70’s, we lived near the hospital and that’s where our polling place was. Voting was interesting. I remember it being lots of tile and very bright.

The building itself consists of an administration building in the middle and a wing on each side. The men were in the east wing and the women in the west wing. Each wing was a series of 5 connected buildings. The farthest building was for the most violent patients. The patients would progress through the buildings until they could be released back into society. It was a humane, gentle, and dignified way to treat the mentally ill at a time when there were no psych meds and patients at other institutions were frequently chained to walls or isolated in cages that resembled boxes.

The building was designed to house 600 patients. By the mid-1960’s, the hospital housed 3000 patients. Patients were “housed” in the hallways and walkways between buildings in the wings. Bipolar patients were tied spread-eagle to their beds if they were having a manic episode.

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The administration building which is now a hotel.

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Detail from the administration building.

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Open balcony where patients could sit – now featuring a cage. Ostensibly, the cage is for the patients’ safety. In real life, it was to keep the inmates in and away from the rest of us.

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One of the curved connecting hallways between two of the buildings in the men’s wing.

In the 60’s, three of the buildings of the men’s wing were destroyed to make room for the new hospital. It’s the epitome of Communist Bloc Chic and damned ugly. As we drove by, we saw a basketball court and inmates playing basketball. The court was surrounded by a high chainlink fence as one would expect. The fence was surrounded by an fence impossible to penetrate or climb over. I did not take a photo. We are not animals. We are not freaks. I would not humiliate these people by turning them into a side show.

I thought about my growing up years.  Because I had junk for parents, I didn’t end up in a mental hospital. My mother and her husband were far too self-centered to even vaguely notice if any of us kids were having problems. Then I thought about how if I hadn’t had junk for parents, I wouldn’t be screwed up.

I buried ghosts. I brought new ghosts home.

I’m linking with Nina Marie here.

Looking for a great gift for a loved one or yourself? Please check out my store, Deb Thuman Art here.

Posted in bipolar disorder, Emotions, Fiber

There Are No Victims Here

I am not a victim.

I am not a survivor.

I am a fighter.

I think that’s my super power. It’s not a bad super power to have. It’s pretty good, actually. This thought train, complete with dining car, observation car, and caboose, left the mental station shortly after reading an email inviting me to a play reading at New Mexico State University that was written by students about reporting sexual assault on campus. I won’t be there. I’m pretty sure I’d want to throw something large and heavy if I were to attend. I’m disgusted enough about how NMSU handled my complaint about sexual harassment. The university’s position is that forcing students to read stories that glorify date rape, gang rape (that wasn’t really rape because the victim enjoyed it) and pedophilia isn’t sexual harassment, it’s protected speech under the First Amendment. Mind you, this decision was made by someone who is NOT an attorney. Getting legal advice from someone who is not an attorney is like having your mechanic do a root canal on one of your teeth.

I’ve been worried about how I didn’t realize how depressed I was until about a month after I had formulated a plan for killing myself, decided when and where to do it, and reminded myself to tell Jim not to accept the body so the state would get stuck with the cremation bill. What if next time, and I’ve no illusions about there not being a next time, I don’t stop myself in time? This is the fourth time in my life, and the third time in 10 years, that I’ve been suicidal. Each time is more serious. So I went back into therapy. Jim will be going to some sessions with me. He needs to understand what’s going on in my head when I get depressed – especially if I don’t realize I’m depressed. You’d think I’d know if I were depressed, but I don’t. The slide down into the black hole is so subtle and slow that I’m usually pretty far down before I realize I’m depressed.

I’ve had little bouts of depression. During one bout, I decided to do therapeutic shopping. I bought pre-cut strips of fabric to make a rag rug. Turns out I need a whole lot of strips of fabric – way more than I bought. Jim offered to cut strips out of any leftovers I happen to have hanging about. I’ll be looking for some solid color fabrics so I can have him cut strips. I’ll use what I’ve made so far as the middle of the rug.

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I looked out the back window the other day and discovered that the huge agave in the back yard is about to bloom. The plant will die after it blooms. Too bad because it’s huge and lovely.

I’m doing okay. Most of the time – probably 90% of the time – I’m not depressed. I’ve got end of the semester burnout, but that’s not uncommon after a difficult semester. My last neurobiology class, and last class of the semester is on Thursday. I am looking forward to not having deadlines for a couple months.

I’m linking with Nina Marie here.

If you’re looking for a cool art, please visit my store, Deb Thuman Art here.

Posted in bipolar disorder

Things I’d Like To Tell My Neurobiology Class

You can learn a whole lot more about how a brain functions if you pay attention to those of us who are mentally ill.

We’re not listened to.

I’ve had a psychiatrist tell me the drug that was causing me all sorts of problems was a “very good drug.” I was thrilled when he got his license pulled for overprescribing meds. I’ve had another psychiatrist who, after I told her the med I was on was working really well, increase the dose. I’ve had friends tell me I’m on the wrong medication when it was clear to me that my meds were working well.

I can’t always tell when I’m in crisis.

You’d think having a mixed episode – simultaneously manic and depressive – would cause me to think something was wrong. It didn’t. I don’t follow the stereotypical manic behavior of spending well more than I can afford during a manic event. I get manic, I cook. I brought to class King Cake cupcakes on Mardi Gras. I brought in sourdough crumb coffee cake cupcakes when I was having major anxiety. I showed the class my first nerve quilt and when I explained the real name was: Get back her motherfucker, sit your ass in that chair, shut the fuck up and listen to me, I could hear the manic in my voice. I’m pretty sure my classmates did as well. They saw the manic. They didn’t see the depressive part. The part where I had formulated a really good, effective plan to kill myself and had decided when and where to do it. I didn’t want to shoot myself in the house because I didn’t want my husband to have to clean up the mess. I even wanted to tell my husband to refuse to accept the body so he wouldn’t have to pay for a funeral.

The class didn’t see that it took me a couple weeks to realize this wasn’t an ordinary depression and that I needed to go back on an antidepressant. They didn’t see that I went through a complete personality transformation about 20 minutes after I took the first pill.

I had to do a short presentation for my neurobiology class. I explained, prior to starting my presentation, that I had my meds tweaked and today’s med adjustment deficits were: balance and coordination problems, memory, and emotional control so don’t be alarmed if I start crying in the middle of the presentation.

My brain works differently from yours.

My moods have little to do with what’s going on in my life. I can feel calm, but then open my mouth to say something, and cranky crap comes out. My brain has a mind of its own. It does stuff without asking first. Like when I have a brain dropout. I’ll be saying something, and the next word I want is no where to be found. My brain goes dark. Literally. I have to put the word together little bit by little bit. Each tiny concept that I grab makes finding the next tiny concept easier. When I was on Lexapro, words would hide in my brain about an inch behind my right eye. I’d have to physically move the word to the left side of my brain to be able to say the word. Psych meds cause brain fog. I’m pretty sure I lose 20 IQ points every time I go on a psych med. I miss my fog free brain. There’s weird stuff I can’t explain. Sometimes people appear taller or shorter than the last time I saw them. I once watched a person’s eyes change from light blue to deep blue and back again. It was fascinating.

Sometimes, my brain makes no sense.

I’ve never had a brain dropout in court. This amazes me. Court happens at the speed of sound, there’s no script, and the person sitting next to me is facing prison time. I’m able to think fast. I’m able to formulate responses fast. I never struggle for words. I’d love to know why this is.

I don’t like the idea of having a brain disease.

Long ago, I learned from my clients that I cannot ever have anything remotely like a normal life if I do not accept my diagnosis. I’m bipolar. Not accepting the diagnosis won’t make me not bipolar. It will make me out of control bipolar. Still, I don’t like the idea of a brain disease. That sounds so permanent. I know I’ll never be able to function without psych meds. I just don’t want to be reminded of that.

I wouldn’t want to not be bipolar.

Some people who are bipolar wouldn’t give up being bipolar because they like their manic episodes. I hate manic episodes. If I have to be not at center, I want to be depressed. Depressed feels natural to me. It feels comfortable. I withdraw inside myself and pretend the rest of the world doesn’t exist. The reason I wouldn’t want to be not bipolar is more complex. I was better able to help my clients because I truly do understand mental illness and psych meds. I’m able to do good work with my bipolar disorder – work like educating people so they aren’t afraid of mental illness. Work like being out of the closet and letting people know it’s not so scary here in the middle of the room. I’d lose all that ability if I weren’t bipolar.

Don’t feel sorry for me and above all, don’t tell me I’m courageous.

I don’t remember a time when I wasn’t bipolar. I’ve no idea what it’s like not to be bipolar. Bipolar to me feels normal. I have the same two choices everyone else has: keep going forward or jump off a cliff. Suicide scares the snot out of me. By choosing to keep going forward, I’m choosing the less terrifying option. Courage has nothing to do with it.

Does anyone have any questions?

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I’m linking with Nina Marie here. Stop by and see what other artists are doing.

Looking for one of a kind jewelry? Please stop by my shop, Deb Thuman Art here.

Posted in bipolar disorder, Pain, Peripheral neuropathy, Photography

Photos, Meds, And Secrets

More med adjustment. Wellbutrin is now replaced by Cymbalta. The point of Cymbalta is to relieve the neuropathy pain. It’s an antidepressant which, for some odd reason, helps with nerve pain. Sort of. It sort of helps me. I’m still having to take gabapentin and still having to sleep with a TENS unit attached to me. Cymbalta is acting like Prozac. I can only take it every other day and I have no appetite. The no appetite part is difficult because I have to take antibiotics for another week and I have to take them with food.

I make no secret about being bipolar, and I’m finding people who have mental illnesses are willing to ask me about medication. While I don’t mind the questions, I do mind that these people are firmly in the closet. I never have and never will out anyone. Still, the stigma of mental illness isn’t going to go away until we all come out of the closet. According to the National Institute of Mental Health, 26% of the population in the US has a diagnosed mental illness. This doesn’t count the number of people who haven’t been diagnosed. The next time you are in a room with 4 or more people, do the math. I’m in a class with 20 other students. Per the math, at least 4 other students have a mental illness. We are everywhere. Even if you aren’t aware of our mental illnesses, we are everywhere.

Jim and I did some hiking during spring break and went to Bosque del Apache on the “spring holiday.” Spring holiday is the politically correct version of Good Friday. Oddly, the spring holiday falls on Good Friday every year. Funny how that happens.

I bought a new lens for the Canon. Tamron 18-400mm. I wanted an all-in-one lens because changing lenses in the field when one is in a desert is not a good thing to do. Sand, dirt, dust, and crud aren’t good things to have inside your camera. I also didn’t want to schlep lenses every time I go hiking. The more I use this lens, the more I like this lens. Jim kept borrowing my camera so I have no idea who took what shots. Here’s the best of the lot.

Jim and I did some hiking at Aguirre Springs and White Sands during spring break and went to Bosque del Apache on the “spring holiday.” Spring holiday is the politically correct version of Good Friday. Oddly, the spring holiday falls on Good Friday every year. Funny how that happens.

Aguirre Springs.

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East side of the Organ Mountains. Aguirre Springs 7

Bunny Ears of the Organ Mountains.

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Where the white gypsum sand meets the desert. The white part in the middle is a dry lake. White Sands 3

It’s amazing how much grows on the white sand which is really powdered gypsum.

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Once vegetation takes root, the dune becomes solid.

Bosque del Apache.

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I’m linking with Nina Marie here.   Stop by and see what other artists are doing.

Looking for a one-of-a-kind gift? Please visit my online store, Deb Thuman Art here.

Posted in bipolar disorder, Fiber, Peripheral neuropathy, Quilts

Closer To Bipolar Normal

Settling back to the kind of normal that’s possible with bipolar disorder. Yesterday, I had a manic episode. It was a small one. I couldn’t calm down. Doing things to try to get rid of the nervous energy, like vacuuming the living room and sucking up the cobweb in the corner, only made me more anxious. I tried art. Didn’t work. I took my anti-anxiety med. Kind of worked.

In desperation, I decided that I would continue working on the next nerve quilt. This one is about regeneration. I decided I was done screwing around trying to find the PERFECT DESIGN, and decided the design I had worked out said what I needed it to say. I decided I was done trying to find the PERFECT COLOR COMBINATION and decided the fabrics I picked out worked well and said what I needed them to say. I cut and pinned. I wanted to start sewing down pieces, but my sewing room doesn’t have good light and I wasn’t sure I was seeing the thread colors correctly. Today, I’ll look at the threads I’ve picked out and make a decision. Then, I’ll start raw edge applique and start some embroidery with Razzle Dazzle.

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Nerves regenerate. If an axon is damaged or dies, the nerve cell can grow a new axon. Or grow new dendrites. It’s called plasticity. The last nerve conduction study showed that the nerve cells in my lower legs had grown new axons. I got all kinds of plasticity going on inside of me and my nerves are regenerating. The neurologists who smile at me and hand me prescriptions for more useless drugs are, as I suspected, full of shit.

I’m linking with Nina Marie here. Stop by and see what other artists are doing.

Looking for a great, one of a kind gift? Please stop by my store, Deb Thuman Art here.

Posted in bipolar disorder, Emotions, Grief, Pain

Maybe I’m Headed Back To Normal

I thought it was just situational depression. Fearing that a nerve conduction study would show that I’m going to have to spend the rest of my life in pain is depressing. There’s a logical reason for the depression. I knew I was suicidal, and I told people about wanting to kill myself. I told Jim and a friend how I planned on killing myself. Hold the pistol about an inch to the left of my breast bone, use hollow point ammunition, and squeeze the trigger. Fast and lethal. When I went for my nerve conduction study, I had to fill out pages and pages of information. I detailed, for an entire page, that I was suicidal, that I had a plan for killing myself, and that I had brought Jim with me in case I needed someone to talk me out of buying bullets on the way home. I formulated a plan for dealing with the police who I was sure would be called. I’d remain calm, I’d be sure not to do or say anything that could possible be construed as a threat to others thereby ensuring that if I didn’t want to go to a hospital, and I didn’t, the police would need a court order to take me to a hospital. Court orders take time. I was pretty sure I’d have about an hour in which to disappear if necessary.

I had a great plan.

No one talked to Jim about me. No one called the police. No one asked me about being suicidal. Probably because no one read the damn paperwork.

I have two bad days a year, April 1 and June 24. April 1 was my late sister’s birthday. June 24 is the anniversary of her death. April 1 is approaching and I’m depressed. My mother, a horrible narcissist, decreed that no one tell me my sister was sick or that she had died. I only knew because a friend saw the obit and called to ask how I was doing. Some years are better than others. I assumed this wasn’t one of the better years. There’s a logical reason for the depression. It would pass after April 1. I just had to wait a few days and the depression would be gone.

Since March 6, 2012, the day after finally being accurately diagnosed bipolar, I had been on both a mood stabilizer and an antidepressant. After the Lexapro and lithium stopped working, I came off them one at a time. I went through withdrawal, then saw my doctor. She prescribed Wellbutrin and Lamictal. I was on the best set of psych meds I’d ever been on.

I started having problems right after the inauguration last year. I was sure the problems were situational. We have a president who brags about being a sex offender. I went into the second worst manic episode I’ve ever had. I tried increasing the Wellbutrin, but that gave me hallucinations. Or maybe there really was a tiny bug pushing a huge dust bunny along the bathroom wall. Backed off on the Wellbutrin and increased the Lamictal. That worked. Once the crisis had passed, I went back to my regular dosage. Problem solved.

Except it wasn’t solved. I started having hallucinations last August and made the decision to come off Wellbutrin. Hallucinations are a good reason to suspect you’re either on the wrong medication or on the wrong dose. I went through 12 weeks of withdrawal which was not only miserable for me, it was miserable for anyone who had the misfortune to be around me.

I thought that because I am retired and no longer working in a hostile, hateful, stressful, and downright miserable environment, perhaps I could get by with just a mood stabilizer. My doctor agreed with my decision. She knows I’ll be back if I’m wrong.

Yesterday afternoon, I realized the depression wasn’t situational. It was permanent. It was a part of my mental illness. I cried because I was depressed. I cried because I felt like a failure for needing to go back on antidepressants. I grew up in a family where seeing a therapist was worse than walking naked into McDonalds at noon. A household run by drunks has one inviolate rule: Don’t tell. I was a failure. I would always be a failure.

In the midst of this, I realized I need to go back on antidepressants. I found my supply of Wellbutrin, cut a pill in half, and took it. Within two hours, I had a complete personality transformation.

I will continue to take a half pill a day and see how this works. I’ve been on a number of antidepressants, and needed to come off every one of them. I came off Effexor when I hung onto the living room wall to keep the universe from spinning out of control. I came off Paxil when I realized that I could not continue living as I was living. Take my Paxil dose, things are fine, then I was out of control and the dose had to be raised. Again and again. I came off Lexapro when my meds stopped working and I was bouncing off the ceiling. After coming off Lexapro, I looked in the mirror and wondered when I had gotten so grossly overweight. I looked around the house and wondered when it had gotten so cluttered. I looked and the clothes I had been wearing to work and wondered whatever possessed me to wear such outfits.

I didn’t gain weight on Wellbutrin. I lost weight although not enough to get down to a healthy weight. I wore normal clothes. I cleaned the bathroom although I’ve still got clutter I want to remove.

When I go back on medication, I go back down the rabbit hole. Again. I enter a cycle that can’t be broken or altered. I enter med adjustment which lasts about 6 months. Then I am in the eye of the hurricane and my life is under control. Then the meds stop working – all psych meds eventually stop working – and I enter med hell. I stay there until I am sure I cannot stay there any longer. Then I enter withdrawal which lasts a minimum of 6 weeks and up to 12 weeks. I long for the ease of heroine withdrawal where all that’s required is puking and pooping for three days. I am forced to repeat this cycle until I die.

To those who reached out to me after my last, depressing, suicidal blog post, thank you. You will never know and I cannot express how much you helped.

On an artistic note….I finished the nerve quilt. And I’m working on a design for the next nerve quilt. While this quilt is about frustration, the next quilt is about healing. I’m getting there. It’s just going to take longer than I want.

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I’m linking with Nina Marie here. checkout what other artists have been doing.

Want to see the art I have for sale? Check out my website: Deb Thuman Art here.

Posted in bipolar disorder, Cognitive problems

What goes on behind my eyes?

I understand laetrile. Remember laetrile? The peach pit pseudo drug that was supposed to cure breast cancer and instead killed women? I understand why women took laetrile. I have my own laetrile. Meditation. And I’m clutching it as tightly as I can. I want it to work.

I had to choose and read a research paper for my neurobiology class and I chose a paper on the effects meditation has on the brain. Briefly, just as you can exercise and grow muscle mass, you can meditate and grow brain mass. The researchers selected two groups; one comprised of regular meditators and one comprised of those who don’t meditate. Because there are many ways to meditate, the researchers chose to limit the meditation practice to Brain Wave Vibration meditation .

The researchers took MRI images of the participant’s brains and discovered specific areas of the brain where the meditators had more brain mass than the same areas in the brains of the non-meditators.

So what? Glad you asked. Several years back, I read a paper about physical changes in the brains of people suffering from PTSD. There were deficits in brain mass in specific areas of the brain. More recently, I read about deficits in brain mass in specific areas of the brain of those who have bipolar disorder. This explained – or seemed to explain – why I have trouble concentrating and why I have scattered thoughts.

Does each form of meditation grow brain mass? Does each form target specific areas of the brain? If so, can a specific form of meditation replace the brain matter my bipolar/PTSD brain is missing? If so, will that cure me? Did the bipolar disorder cause parts of my brain to atrophy? Or did the brain deficits cause the bipolar disorder?

I don’t know the answers to any of those questions, but I’m not waiting for more research. I have taken up meditation although I’ve taken a scattered approach to the form of meditation. I have an app on the iPad that gives me choices of a whole lot of different types of meditation and different topics of meditation. Calm anxiety. Visualize health in your body. Healing grief – a meditation that triggered a wave of PTSD flashbacks. I want my brain back. I want to be able to concentrate without thoughts flying around like billiard balls after a successful break. I want this NOW. Except meditation doesn’t work that way. The brain mass grows gradually and I won’t be able to chart the growth the way I can chart weight loss.

Psych meds treat symptoms of mental illness, but they don’t cure mental illness. Pysch meds are expensive in several ways. Without insurance, my generic mood stabilizer would be more than $128 a month. My mood stabilizer keeps me from screaming, but it gives me brain fog. My scattered thoughts scatter farther and my concentration decreases. At least I’m not screaming.

I want a cure so I hang on to my laetrile known as meditation for dear brain health.

Today is International Women’s Day. When I entered college the first time, I was 25 years old and women had to have higher SAT scores and higher grades than men needed to be admitted to college. When I graduated in 1981, I had earned two degrees, one in journalism and one in biology. At that time, there were two women professors in the biology department of Buffalo State College and one allowed students to address her as Mrs. Wilson rather than Dr. Wilson. One of my physics classes had a higher than usual number of women. There were five of us. One was planning on being an engineer. I was in the biology program. I don’t know about the other three.  There were no women professors in the chemistry department. One chemistry teacher told me I was incapable of learning. Another refused to answer questions asked by female students. Until the day I forced him to answer my question. He told me he had been teaching for 26 years and he never met anyone as insolent as me. I told him I’d been learning for 26 years and I’d never met a teacher who refused to answer women’s questions. I could feel the other students’ fear and shock.

I started law school on my 38th birthday in 1990. Mine was the first law school class that was 50% women.

I’m now in a neurobiology class that’s roughly half women and is taught by a woman. One day, I kept track and discovered that the male students asked or answered questions approximately twice as often as women. Real changes in the sciences, like growing brain mass, take an inordinate amount of time.

To every woman in a STEM program or working in a STEM field, I offer this advice: Never let the male motherfuckers stop you.

I’m linking with Nina Marie here.

Posted in bipolar disorder, Pain, PTSD

Crud

I have the crud.

The Friday before Christmas, we tried to get together with a friend to celebrate her birthday. Jim had the crud, so he stayed home. The Friday before New Years, we tried to get together to celebrate Jim’s birthday and my friend got the crud and couldn’t make it. This week, we tried to get together for lunch, but I have the crud. We’ll try again next Friday.

Crud sucks. The federal regulations for pseudo-ephedrine are absurd, ineffective, and a flaming nuisance. Claritin-D used to come in 750 mg strength. It was great. Now with the current regulations, I can only get Claritin-D in 270 mg dose. These are 24 hour pills and there are 15 in the box. They cost $20 if I buy the Walgreens version (which I did). I have to take at least two of them to get any relief. I can only buy 3.6 grams per day and only 9 grams in a 30-day period. Jim bought a box shortly before Christmas. I bought a box today. If I need any more, I may have to have the cat go buy them. And what does all this do to stop the production and use of methamphetamine? Not a darned thing. Why? As a client explained, it’s too difficult to extract the pseudo-ephedrine from Claritin-D. As for the number of meth addicts? I don’t see any progress there. I’m basing that on drug cases I’ve handled.

I’ve been dealing with slamming into both depressed and manic states. After the last trip to the neurology clinic at the medical school in El Paso, I had blood drawn. Lots and lots of blood. The good news: the ANA test is negative and I don’t have an auto-immune disease. The expected news: My A1C is in the pre-diabetes range. The glucose monitor will arrive this week. I’ll be monitoring my glucose, keeping a food diary, and hoping to have a better A1C result in a few months. The unexpected news: I got a call asking if I wanted financial aid to pay for a blood text that got sent out of network. How much is the blood test? $4,000. Nope – no financial aid and don’t run the test. Next, I got a letter telling me the out-of-network lab can’t use the blood that was sent because it was drawn at a hospital rather than in my doctor’s office.

I recovered from that, and called my HMO to see if the prior authorization request that was submitted early December for my appointment at the neurology clinic at the medical school in Albuquerque had been authorized. No, because the paperwork from my doctor’s office was wrong. I called the doctor’s office and asked for a call back or I would camp out in the office until I got a satisfactory answer. Turned out I had to camp out in the office. The doctor’s office sent in corrected paperwork late December. My appointment is for January 18. I get to call later this week to see what progress has been made. If I have to cancel this appointment, I won’t get another appointment for about 4 months – if I’m lucky.

I’ve decided I don’t want to go back to the medical school in El Paso. I had been wondering most visits if I were the only one in the room who had ever taken cell biology. I had a nerve conduction series that left me furious. First, I had to deal with a resident who is clearly hearing impaired and clearly too arrogant to do anything about it. He’s going to kill someone eventually. The neurologist supervising the test, after I asked in frustration how she would feel if someone told her she would be in pain for the rest of her life, said, “You’re not managing your pain well enough.” THIS ISN’T MY FAULT YOU TWIT. I didn’t say that. I asked her who was doing research on peripheral neuropathy. “No one here.” When I got home, I did a google search and found 496 clinical tests. There’s a pretty nice one in France, but I doubt the cheapskates at the HMO will authorize trips to France. There is a clinical test in Salt Lake City and in Albuquerque. That they might be willing to authorize.

The next appointment, I was in severe pain. When the pain hit a 5, I took a double dose of gabapentin and sat hooked up to a TENS unit for an hour or so. That’s when the pain hit a 7. I took another double dose of gabapentin. That meant I had taken a full day’s dosage in a span of 2 hours.The pain dropped back to a 5. I was walking into walls, stoned out of my mind, in pain, and pissed off. The neurologist said he could raise the dose. “No you can’t, because I won’t take it.” The gabapentin works sometimes, but not always. There’s no pattern that I’ve been able to spot.

After being told the nerve conduction series showed damage to the axion, I started asking microbiology type questions. Turns out, I really was the only one in the room who had taken cell biology. It was clear that the neurologist had no idea what I was asking about. I told him that I thought I figured out the problem. He’s used to dealing with big things and I’m used to microbiology. He told me neurology wasn’t rocket science. I strongly suspect the $4,000 blood test was retaliation. The test if for a genetic abnormality. No one asked me if anyone else in the family has neuropathy. And if this were genetic, it would have shown up 40 years earlier.

All of this excitement caused an outbreak of hives. It took me a couple days to figure out the redness and swelling was hives. Usually, stress hives start on the insides of my arms. This time, it was on the outsides of both arms. One antihistamine cleared up the hives.

I’ve been working, now and again, on designing the perfect purse. I know what I want…zippered pockets on the outside, the top with a recessed zipper, and a flap with a zippered pocket. I also need a pocket on the end that will hold a water bottle. I need a purse large enough to hold my 12.9” iPad Pro. I was trying to work out a pattern yesterday when Tinker decided to help by insisting on sitting on the drawing paper. He wants to be by his humans and he likes the sunbeams in the sewing room.

One odd thing has been happening. I’ve been having flashbacks of crap that happened to me when I was growing up. My psychologist, when I asked him if flashbacks ever end said it was finite. Got news for you. PTSD is for life. It’s been more than 45 years since I lived in an insane asylum run by a violent drunk and a violent narcissist. I’m still having flashbacks. Years ago, I stumbled upon a way to deal with the flashbacks – look at the memory, acknowledge that what happened was horrible. Since then, the flashbacks haven’t been debilitating. They seem to have less power. They also seem to show no signs of ever stopping.

I’m linking with Nina Marie here. See what some other artists have been doing.

Please stop by my web store, Deb Thuman Art here.